AMEND provides information resources and support services for rare, genetic diseases and syndromes of the endocrine (hormone) system, including multiple endocrine neoplasia, and phaeochromocytoma and paraganglioma syndromes (through its Phaeo Para Support UK group). Due to their genetic nature, when one person in a family is diagnosed with a condition, this often leads to others being diagnosed, including children. We know that families that discuss their condition with children have a better relationship as they grow up. To help adults to begin the conversation about why a child needs to have hospital tests, or why a parent may be unwell, we have asked Mister Munro to develop a simple cartoon to explain phaeochromocytoma and paraganglioma syndromes in the easiest way possible. We are pleased to have launched, 'Me, my mum and Dave' on NET Cancer awareness day on 10th November 2022.
We align with the following UN Sustainable Development Goals: