Invisible Manners is an animated short film on "invisible conditions" and the experiences of those affected – it features the voices of Billy Boyd (The Lord of the Rings, The Hobbit: The Battle of the Five Armies, Outlander), Isy Suttie (Peep Show, Man Down, Damned), Weruche Opia (I May Destroy You, Bad Education, Sliced), & members and friends of the NPUK/INPDA community 📽
This project has been developed closely with our community in order to illustrate the many emotions and challenges an individual with an invisible condition can face on a daily basis. By using a mixture of animation, photography, and narrated lines read by stars from both outside and inside of our community, we hope we have developed something which can raise awareness of both Niemann-Pick disease(s) and invisible conditions more broadly...as "not all that you can see, is everything that is there"…and there are far more similarities than differences when it comes to the lived experiences of those affected by rare, genetic and/or invisible conditions.
Written & directed by John Lee Taggart | Animation & cinematography by Lingxi Zhang | Original score composed and performed by Scott Ampleford | Sound engineering by Simeon Soden | Executive produced by Eleanor Lily Taggart | Assistant producers James Brooks & James Keeble (ASMD NPB patients and NPUK Community Members) | Featuring original songs kindly donated by Badger & Lilliput | Voices featured; Aadam Asif, Graham Kirk, Sandy Cowie, Nadia Slatch, Daniel de Vicente, Justin Hopkin, James Keeble, Sally Tungate, Cláubia Viegas Bender, Sara Ströer, Craig Burns, Alec Koujaian, David Rose, James Brooks, Philip Wilsdon, and Carol Leon.
Developed in memory of all of the beloved community members we have sadly lost over the years, many of whom feature in the closing section of the film...you are in our hearts always as we continue to fight for a brighter future for those affected by NPD ❤️
We are dedicated to making a positive difference to the lives of those affected by Niemann-Pick diseases - a rare and devastating group of genetic conditions which affect both young children and adults. We raise much needed awareness, provide practical and emotional support, advice and information and facilitate research into potential therapies.
We are a small charity with less than five hundred members, and the work we do is funded entirely through fundraising activities and successful grant applications. Our strength, therefore, comes from the dedication of our much valued families, members, benefactors and volunteers who work with tremendous effort and loyalty in support of the charity.
We align with the following UN Sustainable Development Goals: