Graham's Story is the first of four documentary short films narrated by Sheila Reid, which will form the "Invisible Interviews" series. In this film Graham details his journey with the rare and fatal genetic condition, Niemann-Pick disease type C, and explores how it has impacted both his own life, and that of his family.
"...Graham is such an incredible advocate for those affected by Niemann-Pick, and a great example of the strength we have within our community. Please do share with others if this piece has touched you - awareness is key and we need your help..."
Toni Mathieson, NPUK Chief Executive
Invisible Interviews is a companion piece to our 2021 animated short film, "Invisible Manners", which featured Billy Boyd, Isy Suttie, and Weruche Opia alongside numerous voices from the rare disease community.
CREDITS: written & directed by John Lee Taggart // featuring Graham Kirk // narrated by Sheila Reid // intro sequence by Lingxi Zhang // score kindly provided by Scott Buckley // assistant producers: Stephen Perryman, Danciu Rareș, and Eleanor Taggart // NB: full credits list featured at the end of the film, but we want to say a HUGE thank you to each and every person who has helped with this project in any way!
Many thanks, as ever, to our grant funders/supporters; Children In Need, The Hollie Foundation, Charities Aid Foundation, and The National Lottery Community Fund, as well as each and every one of our fantastic fundraisers who ensure we can continue to offer our vital support service.
For further information, and to support our small charity, please visit: www.npuk.org
We are dedicated to making a positive difference to the lives of those affected by Niemann-Pick diseases - a rare and devastating group of genetic conditions which affect both young children and adults. We raise much needed awareness, provide practical and emotional support, advice and information and facilitate research into potential therapies.
We are a small charity with less than five hundred members, and the work we do is funded entirely through fundraising activities and successful grant applications. Our strength, therefore, comes from the dedication of our much valued families, members, benefactors and volunteers who work with tremendous effort and loyalty in support of the charity.
We align with the following UN Sustainable Development Goals: