Judges’ Award 2024 Gold Longform Under £100,000
A Rare Find is a comedy short film with a difference...as it hopes to raise awareness and start conversation surrounding newborn screening, the blood spot/heel prick test*, and the desperate need for positive progress within the current UK newborn screening programme (which at present, screens for only 9 conditions, for context the USA screen for up to 59!)
Life with a newborn is hard enough, as our struggling young parents (Jack Robertson & Chantelle Taggart) find, but the challenges of a long “diagnostic odyssey” can make this even harder. Early screening can be a huge positive step to find out if a rare condition is present, as early intervention and therapy is absolutely key.
This film was made possible thanks to the support of 16 small rare disease charities from The Newborn Screening Collaborative (a UK LSD Collaborative led initiative), including; AGSD - UK, ArchAngel MLD Trust, Batten Disease Family Association, Cure and Action for Tay-Sachs - CATS Foundation, Children's Heart Federation, Fragile X Society, UK, The Gauchers Association, Max Appeal, MLD Support UK, MPS Society UK, Muscular Dystrophy UK, Niemann-Pick UK, Pompe Support Network & Spinal Muscular Atrophy UK.
Written & Directed by John Lee Taggart | Narrated by Robert Webb | Starring Jack Roberston, Chantelle Taggart, Cora Lily Taggart & Chris Houghton-Coldwell | Featuring Oliver Cape, Chloe Taggart & John Lee Taggart | Produced by Chris Thompson (Media Borne) | Director of Photography Dan Gregson | Cinematography by Daniel Patrick Vaughan | Edited by Jack McBride | Production Coordinator Rebecca Gallagher | Production Assistant Johno Ramsay | Poster Artwork by Lingxi Zhang
The UK LSD Patient Collaborative Group is comprised of patient organisations representing those affected by Lysosomal Storage Disorders (LSDs). We have joined together to form an action group to advocate and work on behalf of LSD patients and their families in the UK. The group is made up of representatives from 7 charities in the UK who provide support and information to patients and families affected by different LSDs. Together we represent over 70 rare and ultra rare diseases and almost 2500 patients and their families.
"Hadid and I" is a concept short film which was produced in support of our organisation by one of our member group's leads, Niemann-Pick UK's Head of Communications, John Lee Taggart. The film touches on the diagnostic odyssey, men's mental health, the impact of rare diseases, and much much more...but with a comedic twist largely not present in films which concern this sort of subject matter.
We hope you enjoy the film - we wish to say a huge thank you to all involved for helping to bring further awareness to lysosomal storage disorders and our small charity.
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