Huntington's Disease Association

We’re here to help people living with Huntington’s disease live a better life. 

What is Huntington's disease?

Huntington’s disease is an illness caused by a faulty gene in your DNA - the biological ‘instructions’ you inherit which tell your cells what to do. 
If you have Huntington’s, it affects your body’s nervous system – the network of nerve tissues in the brain and spinal cord that co-ordinate your body’s activities. Although there is, as yet, no cure, you can learn to manage symptoms more effectively to improve your quality of life. The symptoms of Huntington’s disease vary widely between people. Even people in the same family may be affected differently. However, changes usually affect three main areas:

Movement (movements may happen that you don’t expect, while doing what you do want to do becomes more difficult)
Cognition (difficulties with planning and thinking)
Behaviour (changes in behaviour and personality)

The disease is genetic, if you have a parent with the disease you have a 50% chance of inheriting it.

What does the Huntington's Disease Association do?

We improve care and support services for people with Huntington’s disease, educate families and professionals, and champion people’s rights.

Our vision
Together we will build a better life for anyone affected by Huntington’s disease.

Our mission

To enable everyone affected by Huntington's disease to live life to their full potential by:

. Improving care and support

. Educating families and the professionals who work with them

. Championing the needs of the Huntington's community by working together

. Influencing decision makers to tackle discrimination and secure equity of access to services

We are always Inspired by our community.

Find out more about Huntington's disease and what we do.

UN Sustainable Development Goals

We align with the following UN Sustainable Development Goals:

Entry in Charity Film Awards 2024