This animated film was co-produced with the parents of children living with half a working heart. It is narrated by the voices of these parents, and captures the daily challenges and triumphs of families affected by the condition. The film highlights the personal journeys of these families, detailing the medical, emotional, and practical hurdles they face. From multiple surgeries to navigating everyday life, the animation sheds light on the resilience and strength of these children and their families.
We are incredibly proud to share this animated film with the public. It’s a testament to the bravery of our families and the collaborative spirit of our community. Our goal is to urgently raise awareness of the challenges of supporting a child with a life-limiting condition such as a single ventricle heart and inspire others to find out how they can make a difference themselves. The families have generously shared their personal stories, medical journeys, and the emotional impacts of living with the condition. The film offers a real-life perspective on the challenges of dealing with frequent hospital visits, surgical procedures, and the constant need for vigilant care and living with an uncertain future.
Little Hearts Matter is the only charity in the UK dedicated to supporting and empowering anyone affected by the diagnosis of a single ventricle heart condition – or half a working heart. We support families along every step of their journey, from initial diagnosis, through treatments and into life at home. Our vision is to see children with half a working heart achieve their full potential.
Dedicated services for all ages ensure they can access tailored support, including our support line (open 365 days a year), events and groups to link them with others, and information publications. Cardiac teams use our resources to explain diagnoses and surgeries to parents, as well as referring them to us to receive further support and simple explanations of their complex medical advice.
We align with the following UN Sustainable Development Goals:
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