FINALIST 2025
They are unnecessarily missing out on their childhood and their futures are being put at risk, because people don’t understand epilepsy and how it can be different for everyone.
#UnderstandMyEpilepsy campaign is led by young people with epilepsy. We listen to them and work with them to amplify their stories. Working together we will take their voices to the decision-makers and make them sit-up and listen.
Children left feeling lonely, isolated and rejected. Unnecessarily excluded from opportunities at school and struggling to keep up with their classmates.
Due to common misunderstandings about epilepsy, and what people mistakenly think it means you can and can’t do, young people are often met with unnecessary barriers preventing them from doing all the things they are capable of. Many are finding themselves excluded in school, from sport, social gatherings, and relationships.
As a child this can isolate them from important life experiences, and as they grow it can limit their social mobility, financial independence, and career progression.
The #UnderstandMyEpilepsy campaign plans to help people understand that epilepsy is unique to each person. By listening and working with the young person and understanding what they are capable of, they can be safely included and supported to enjoy those precious childhood moments, and to reach their true potential.
Childhood epilepsy can be frightening, isolating and often a misunderstood condition. We work with children and young people with epilepsy, to ensure their voices are heard and their rights protected.
We campaign for children’s rights. We deliver health services and research that improve diagnosis and treatments. We support children and young people throughout school, college, and university. We provide information, friendly advice, and practical help for living everyday life.
We align with the following UN Sustainable Development Goals:
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