“Jade’s Story: Familial Cavernoma” is a powerful portrayal of Jade—a trustee, volunteer, and podcast host for Cavernoma Alliance UK—sharing her journey with cavernoma, a rare condition. The film captures Jade’s remarkable courage and honesty as she reveals the profound impact of living with a rare condition (which for her is genetic), hidden disability, and epilepsy, on her life and her loved ones. Produced by Lucy Gohm, who also lives with cavernoma, this film sheds light on the challenges and resilience of those navigating life with a rare disease.
Cavernoma Alliance UK is dedicated to supporting individuals and families impacted by cavernoma—a rare and often overlooked condition caused by clusters of abnormal blood vessels in the brain or spine. Our mission is to enhance the quality of life for those affected through comprehensive education, compassionate support, and pioneering research.
We align with the following UN Sustainable Development Goals:
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