The Sandcastle Trust

There are more than 6,000 genetic conditions. Each one affects less than 0.1% of the population but together they are one of the greatest causes of disability and early death, affecting three million families in the UK. (source: National Human Genome Research Institute)

Many are life-limiting, all are life-changing.

The Sandcastle Trust walks alongside families living with a rare genetic condition to help build lasting positive family memories, strengthen family relationships and support their emotional wellbeing and resilience.